Thursday, August 28, 2014

Researchers - see NIH policy on genomic data sharing

To promote sharing of human and non-human genomic data and to provide appropriate protections for research involving human data, the National Institutes of Health (NIH) issued the Genomic Data Sharing (GDS) Policy on August 27, 2014, in the NIH Guide Grants and Contracts (available at http://grants.nih.gov/grants/guide/notice-files/NOT-OD-14-124.html), and in the Federal Register (available at https://federalregister.gov/a/2014-20385) on August 28, 2014. 

Highlights from news release:
  • "Investigators are encouraged to seek the broadest possible sharing permissions from participants for future research use of their data."
  • "In general, investigators should make non-human genomic data publicly available no later than the date of initial publication"